SWANSEA, Wales: The phrases “autism spectrum” or “on the spectrum” have become part of everyday language. They are often used as different ways of referring to someone who is “neurodivergent”.
The term was coined in the 1980s by psychiatrist Dr Lorna Wing, whose work transformed how autism was understood in the United Kingdom. At the time, her “autism spectrum” concept was groundbreaking. Instead of seeing autism as a rare, narrowly defined condition, she recognised a wide range of traits and experiences.
But the idea of a single spectrum, which stretches from “mild” to “severe”, may be misleading. And some autism experts, including me, argue the term has outlived its usefulness.
When most people hear the word “spectrum”, they may picture a straight line, like colours arranged from red to violet. Applied to autism, this suggests autistic people can be ranked from “more autistic” to “less autistic”. But that’s not how autism works.
Autism is made up of many different traits and needs, which show up in unique combinations. Some autistic people rely heavily on routine, while others find comfort in repetitive movements known as “stimming”. And some have an intense focus on particular topics, a concept researchers call “monotropism”.
There are also known links with physical conditions such as hypermobility. Because autism is made up of all these different elements, there can be no single line on which every autistic person is placed.
A DIFFERENCE RATHER THAN A DEFECT
Attempts to draw boundaries still persist, however. The American Psychiatric Association’s diagnostic manual divides autism into three “levels” based on the amount of support a person is judged to need. They run from level 1 “requiring support”, to level 2 “requiring substantial support” and level 3 “requiring very substantial support”.
But there is research that argues these levels are vague and inconsistently applied. They don’t always reflect someone’s real-world experiences.
Life circumstances can also change a person’s needs. An autistic person who usually copes well may experience “burnout” and have an accompanying increase in support needs, if their needs have been unmet for a long time.
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