‘Her battle is far from over’: 8-year-old with rare blood disorder faces serious complications after transplant

An eight-year-old Indonesian girl who underwent a bone marrow transplant is facing another uphill battle, as serious complications continue to hamper her recovery.

Speaking to MS News, Kezia’s mother, Yulia, said her daughter is currently receiving treatment at Subang Jaya Medical Centre (SJMC) in Malaysia after developing chronic graft-versus-host disease (GVHD) following the transplant.

The condition has affected Kezia’s liver and digestive system, leaving her reliant on several medications, frequent hospital visits, and close medical monitoring.

After exhausting their savings and borrowing money to fund her care, the family turned to a Give.Asia fundraiser to help cover Kezia’s medication, laboratory tests, hospital appointments, and other ongoing medical expenses in Malaysia.

Diagnosed with an extremely rare blood disorder at 6 months old

Yulia told MS News that Kezia was diagnosed with Haemoglobin Little Venice after becoming “extremely pale and weak” when she was just six months old.